the story

Ginny’s blog:
the wife’s log of daily chaos
eliot’s blog: blog we kept during and after the life of our son.
99 Balloons: engaging disability.

the atypical life::

looking back::

This is my second blog.  I began the first one upon receiving the news that our unborn child had a condition called Trisomy 18.  I could try to explain the ins & outs of this diagnosis whereby the coming babe had 3 chromosomes on his 18th set- there should have been only two- but I’ll just give it to you the way it was given to us:  “not viable for life”.

His name was Eliot, and I’ve never beheld a life more beautiful than his.  He lived for 99 Days, and at his funeral we released 99 balloons to honor each unpromised one.  That first blog is a holy space for us, and we continued to blog on it throughout our first year of grief.

In the days since, Ginny and I have: struggled with how life looks now, bellowed in laughter at the many joys along the way, become parents of three beautiful children whom we affectionately call “the rascals”, and doggedly sought to live our lives in light of the lessons that God taught us through the life of our first son.

looking down:

We live in Fayetteville, Arkansas- surrounded by the beautiful Ozarks and friendships so deep that “friend” no longer suffices.  I get to work for 99 Balloons– an organization we founded serving special needs children, families and orphans.  The burning desire to raise the stature of these children on a global level arises from the ashes of my own life.

I have held and been shown the infinite worth of one.  In a world that exalts power and beauty, may we be odd- drawn to the broken, those marginalized due to imperfection.  Because God is right where He says He will be- with them.

I love to write.  Don’t profess to be any good at it, but committed to the practice nonetheless.  This is my space to think, pray and process.  I wrote A Story Unfinished chronicling our journey from Eliot to Lena and all the in-between.  Where the outside world sees chaos in our home, we see beauty.  Where they see a family of five, we see six.

It’s all a little atypical, but we like it that way.

Comments on this entry are closed.