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thanks so much for asking…we would love for the video to be used in that way. keep doing great stuff

Dear Matt,
My name is Jessica, and I am doing a project on Edwards syndrome. We each recieve a partner and get “married” we have a child that has a disorder, in my case I recieved Edwards syndrome. Me and my partner have a boy and in the end we have to make a powerpoint and then explain why or why not we’d keep the child. (we’ve already decided to keep our child because he will be ours forever and you can’t deny it. Also god knows why he does things.) One of the things is to contact a person who has had or has a child with Edwards syndrome. I’d like to learn more about it, not just because it’s a school project. I’ve become more aware about it and more interested. I’d also like to show your 99 balloons video to my class in my Power Point, because it is shows your love and committment to Eliot.

Dear Matt,
My name is Adil and I’m a muslim from Saudi Arabia. My wife and I saw your amazing video “99 balloon” and we’re inspired by your amazing journy with your lovely child . We admire you and I want you to know that Eliot si inspiring people from all over the globe.
God Bless you you all.

Matt,
Watching and reading Eliot’s story is very close and personal to me at this time. We too are facing this with my Best friend and her beautiful little girl Keeley. She was born on April 14, 2010. My friend Shantele had positive test results back around 21 weeks with her choromosomal testing, she went on for the Level 2 ultrasounds and was assured that the baby looked perfectly fine and was not encouraged to pursue the amniocentesis ” we believe it is a false positive” is what she was told. Shantele carried Keeley full term and througout her checkups was still assured that the baby was fine and was almost 7 pounds. When keeley was delivered via C-Section and Shantele was shown her beautiful little girl she knew something was wrong because she was not looking at a 7 pound baby. Keeley was 5 pounds 3 ounces. On the outside there is not much deformity. Clenched hands, low set ears, small mouth. Everything else is on internal. She has a deformed lung, atleast one hole in her heart, a severly narrowed aorta, plus a few other things I cannot think of at this time. This is a very hard time for us as I know you can understand. Keeley is so beautiful it is hard to believe that she is not a perfectly healthy little girl.

I admire your strength, even though you said multiple times in your blog that you dont have strength, i feel that you must to have done all that you have to remember your beautiful little boy.

It saddens me that the medical world ” writes” these babies off. They don’t want to do much for Keeley because they say that it won’t do anything for her. We understand reality and understand what will happen sooner than later but they have gone to the point of not having her on oxygen.

But so far Keeley is holding her own and as long as she contiues as she is they will be sending her home with Mommy and Daddy on tuesday. I pray for my friend ( more like my sister actually) and I pray for her husband, but mostly I pray for Keeley, that somehow she beable to enjoy her short life with us all her. And I pray that someday we will all beable to meet her again. Keeley was born on my grandfather’s birthday and I know that when God takes her that my grandfather will be right there to help her run with the angels.

This is a true test of faith for me, but I do believe that things like this happen for a reason.

Your little boy is absolutely beautiful in every way, and my thoughts and heart are with you.

Jennifer Lyons

Your family is an inspiration. I have lost a child to Trisomy 18 and have lived for 6 years now with a son who had a stroke in utero who has some brain damage. You have been through so much, it is amazing what people can accomplish when they focus on only what is truly necessary. Thank you for sharing your story. Rest in peace Eliot.
Lori

Hello,
I watched your segment on the Today Show and wanted you to know how much it touched me. We are also a Christian family that’s life has been touched by Trisomy 18. Our precious Lynsdi went to be with Jesus when I was 19 weeks pregnant with her. We later found out she had Trisomy 18. We have since been blessed with 3 healthy children. Lydsi will always be close to our hearts, and we long for the day we are all united in Heaven. May God bless you and your beautiful family!

Sincerely,
Amy Ehmann

Dear Mooney Family:

I am currently 6 months pregnant with our daughter Regan who was diagnosed with Trisomy 18 about 1 month ago. Without a question in our minds we have continued on with the preganancy. At first we felt so alone, but after alot of research have found that there are thousands & thousands of us out there. Through a friend I found your website & watched your video on one of my “good”days. It was touching & has given me some ease to the endless possibilities of my days ahead.

Thank you for sharing your story.

Dear Mooney Family,

What a beautiful story about faith and love. One thing I would like to share with you, however, is that the release of helium filled balloons is potentially deadly to the environment and wildlife including marine life such as endangered whales, turtles, and birds.

A few stories on the Save the Whales website include:
A young sperm whale was dying when it stranded on a New Jersey beach. A balloon had had lodged in its stomach, preventing the passage of food.

A leatherback turtle (which is an endangered species) starved to death because a latex balloon halted passage of food to its stomach. The only thing found in its intestines during a post mortem was three feet of nylon string attached to a balloon.

Perhaps you could include a little note or footnote somewhere on your website to bring awareness to this issue? It would be a shame that more animals would needlessly suffer and die as a result of such balloon releases.

Here are a few other links and resources addressing this issue.
http://www.roanoke.com/editorials/commentary/wb/244405
http://www.nytimes.com/1990/04/01/nyregion/l-balloons-effect-on-the-environment-867890.html

Thanks for reading,
Susan

you continually bless me. I have shared your testimony with so many and it is always a blessing!!!
God bless you and your precious family!

Dear Mooney’s,

Thanks for sharing your story. My wife and I recently discovered that our son Isaac (20 weeks) has Trisomy 18. It’s been a trying time as you are fully aware but we definitely found peace after stumbling across your story. Thanks for sharing and god bless.

Travis & Ashley

Dear Mooney’s,

I wanted to thank you for being such an amazing inspiration. Your video brought a ton of mixed emotions. I’m 21 years old, and am 23 weeks pregnant with a baby girl. After my first trimester we found out she had a few abnormalities. And was at a high risk 1 in 57 for Trisomy 18 based on my 2nd trimester apf test. I refused the amnio, for many reasons. And every time we have an ultrasound something new is found with my princess. Our Dr explained that she will definatley need extra care when she’s born, but that all these signs are leading to Trisomy 18 but we wouldn’t know for sure unless the amnio was performed or until she’s born. It breaks my heart to think about the what if’s but I don’t have the courage to do the amnio. I love my princess so much already and know that no matter the out come, I will make sure her life on earth is the best life a child can possibly experience, like you did for Eliot!

Dear Mooney’s,

I’ve watched your beautiful video of your son Eliot. Your video brought a ton of mixed emotions. We live in the Netherlands ,On 31 Oktober 2007 i gave birth to a boy with trisomy 18 he lived for 3 days. We didn’t know in the preganancy that he had trisomy 18.

Thank you for sharing your video

Hi! I’m from Brazil and I’m only 15 years old. I just saw the video and Eliot really was a big boy. I know it’s a difficult loss to overcome, but would like to send my strength and my prayers that are going for him today. I appreciate you, mommy and dad. Eliot is probably so pround of you… The whole world was touched by this story. Stay well! I really apprecciate you, your strength, your confidence and stuff. From Brazil with love…

Matt and Ginny,
A friend of mine has a grandchild on the way and they suspect either Trisomy 13 or Trisomy 18. She has an amniocentesis on Monday with results to follow. I saw your video and hoped she could contact you for any advice, help or other resources you can give to her. I have given her your email address and the link to this website. Thank you for sharing your beautiful story.
Terry

Dear Matt, My name is Linda and 16 years ago on June 29th 1993 I gave birth to my daughter, Mary Emily. She had Trisomy 18 as well. She lived for 1 hour, but will live in our hearts forever. My husband and I have always said that through her birth and our dedication to her she accomplished more during her time on earth than others never accomplish in a lifetime. She was our fourth child. I had a 6,5, and 3 year old at home. We learned of the Trisomy at approx 30 weeks and if it wasn’t for God in our lives I have no idea how we would have ever gotten through everything. For me, my defining moment was when I realized that our blessed mother had also said yes to giving birth to a child knowing full well that he didn’t truly belong to her and she would one day have to say goodbye to as well. Once I realized that my purpose was to give birth to her, so that she could go and live in the arms of god, then I felt better with all my decisions. I had no idea how long we would have her, but there was no doubt in my mind that she would be here with us, even if just for a moment. We all have the same desire..to someday get to heaven. some of us just get there sooner than others and I know we will all be together again. Besides my daughter Mary, we now have six children ages 23, 22, 20, 15, 13 and 5. God has blessed me so much! Thank you so very much for sharing your story and continuing to share your story with others. God Bless you and your beautiful family as well.
Linda
+1

There are two children on Reece’s Rainbow who have Trisomy 13 or 18. There is “Shaun” in Russia who has Trisomy 18 and “Lisa” in China who has Trisomy 13. Another lady and I have been trying hard to find families and funding for their adoptions. I made a Facebook group for them called “Trisomy 13 and 18 Adoption”.
I don’t know if their trisomies are mosaic, full, or translocations.
I made a post about them in my adoption advocacy blog. Can you please spread the word about these two lovely children who deserve families?
http://orphans-rainbow.blogspot.com/2011/12/two-children-of-different-trisomies.html

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