Due to my lacky blog job, it has been a while, but we made it through the 6th anniversary of Eliot’s passing. Gin & I took Lena to a couple of appointments in St Louis and were able to have some real time to talk and remember and miss him while we drove the Sube to and fro.
I am headed to Minneapolis on Wednesday to man a 99 Balloons booth at a conference centered on disability. It seems that soon after the schedule will have some holes, and I am looking quite forward to that. This fall has left me longing to move to the country, grow facial hair (well, not shave) and wear flannel. Anything to put the world at arm’s distance. However, I do not make a good Grizzly Adams, so I’ll just probably read and write a bit more instead; but maybe I will don flannel in a show of testosterone. Nothing says take that world, like wearing a pajama shirt in the daytime.
Last week we got an email from Lena’s therapist. It was the following video. I feel that anything I say would not do justice to all that this video says without a word.
Yeah, she just did that.
219 Comments
Due to my lacky blog job, it has been a while, but we made it through the 6th anniversary of Eliot’s passing. Gin & I took Lena to a couple of appointments in St Louis and were able to have some real time to talk and remember and miss him while we drove the Sube to and fro.
I am headed to Minneapolis on Wednesday to man a 99 Balloons booth at a conference centered on disability. It seems that soon after the schedule will have some holes, and I am looking quite forward to that. This fall has left me longing to move to the country, grow facial hair (well, not shave) and wear flannel. Anything to put the world at arm’s distance. However, I do not make a good Grizzly Adams, so I’ll just probably read and write a bit more instead; but maybe I will don flannel in a show of testosterone. Nothing says take that world, like wearing a pajama shirt in the daytime.
Last week we got an email from Lena’s therapist. It was the following video. I feel that anything I say would not do justice to all that this video says without a word.
Yeah, she just did that.
219 Comments
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on November 6, 2012 at 2:11 pm
Love it! I think I know what it must feel like… I have a new daughter with Spina Bifida (a toddler adopted from Honduras) and we’re working towards the same thing! 🙂 So excited for Lena reaching such a huge milestone!
We have a mutual friend, Cary, and my son is in her son Rush’s class. Cary pointed me to your blog when you were bringing home Lena (because we were in the waiting process at that point), and I’ve been so encouraged by your posts and your work with 99 balloons, (and by Eliot’s story, I read your blog at that time as well and I am still genuinely impacted by it today, though I would much rather him still be with you!)
And lastly, I love the Storyfork! It gives me hope… as I can often feel overwhelmed and sometimes lonely with this new journey. Thank you drawing awareness to disability globally and showing the beauty in it!
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on December 10, 2012 at 10:14 am
Amy,
Thanks for getting in touch and letting us know about your daughter. Cary had brought you up recently. Please feel free to get in touch if you would like…I would love to know more about you guys and get caught up since it has been quite a while since we met in St Louis. (matt(at)99balloons(dot)com
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oops, I meant to link up to my blog.
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on November 6, 2012 at 7:17 pm
Way to go, Lena! I am so excited for you guys. That is just awesome!
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on November 20, 2012 at 7:07 am
What a beautiful miracle! God bless you Mooney family. Have a wonderful blessed Thanksgiving Day. BTW that occurs every day doesn’t it? Meaning thanksgiveng Day! Love and prayers.
Love it! I think I know what it must feel like… I have a new daughter with Spina Bifida (a toddler adopted from Honduras) and we’re working towards the same thing! 🙂 So excited for Lena reaching such a huge milestone!
We have a mutual friend, Cary, and my son is in her son Rush’s class. Cary pointed me to your blog when you were bringing home Lena (because we were in the waiting process at that point), and I’ve been so encouraged by your posts and your work with 99 balloons, (and by Eliot’s story, I read your blog at that time as well and I am still genuinely impacted by it today, though I would much rather him still be with you!)
And lastly, I love the Storyfork! It gives me hope… as I can often feel overwhelmed and sometimes lonely with this new journey. Thank you drawing awareness to disability globally and showing the beauty in it!
Amy,
Thanks for getting in touch and letting us know about your daughter. Cary had brought you up recently. Please feel free to get in touch if you would like…I would love to know more about you guys and get caught up since it has been quite a while since we met in St Louis. (matt(at)99balloons(dot)com
oops, I meant to link up to my blog.
Way to go, Lena! I am so excited for you guys. That is just awesome!
What a beautiful miracle! God bless you Mooney family. Have a wonderful blessed Thanksgiving Day. BTW that occurs every day doesn’t it? Meaning thanksgiveng Day! Love and prayers.